This is Jillian. She has a disease called ADOA (Autosomal Dominant Optic Atrophy) which involves vision loss, hearing loss, disturbances in the nerves used for muscle movement and sensation, and muscle weakness. Jillian has been given an estimation of being blind before her sixth birthday, and she’s currently very close to turning five years old. They say her hearing will be gone as a pre-teen as well. ADOA affects every child differently, so there are many who aren’t as fortunate to have their senses as long as Jillian has. ADOA is one of the most under-funded and under-researched causes that there is, and I’ve been working with Jillian’s family to help raise awareness about the cause and the efforts that are finally being put into place so that research can begin for the sake of Jillian and all others like her. Please help me spread the word by sharing this post and also following her journey on Facebook (https://www.facebook.com/JilliansCure/) for more information on ADOA, as well as opportunities that you may have to assist in aiding the research efforts so that a cure can be found sooner rather than later.
Reposted from Dustin Dorough's Blog, 'I Thawed Out For This?'